USEFUL LINKS
Prosthetic and Orthotic Resource
360oandp.com
National Limb Loss Information Center
www.amputee-coalition.org/nllic_links.asp
888/267-5669, ext. 8130
The Parent Support Network, a program of ACA’s National Peer Network, can provide contact with another parent that has experienced raising a child with limb loss or limb difference.
www.activeamp.org
Active Amp provides information about sports and activities for Amputees.
www.amputeehockey.org
AAHA provides opportunities for amputees and other disabled athletes to participate in competitive hockey. They have a youth program and offer education events for young amputees interested in hockey.
http://www.roadrunnersports.com/rrs/content/topic.jsp?contentId=1800024
Athletes Helping Athletes provides hand cycles to children with disabilities.
www.birthdefects.org
Birth Defect Research for Children is your resource for free birth defect information, parent networking and birth defect research through the National Birth Defect Registry.
www.blazesports.org
BlazeSports America provides sports training, competitions, summer camps and other sports and recreational opportunities for youth and adults who use wheelchairs, have a visual impairment, have an amputation, or who have a neurological disability such as cerebral palsy or spina bifida. Participant ages range, depending on the program, from 6 years through adulthood.
www.cpofnj.org
For more than 55 years, Cerebral Palsy of New Jersey has provided services, support, education and advocacy to children and adults with disabilities to help them lead fuller lives at home, at school, at work, and at play.
www.challengedathletes.org
It is the mission of the Challenged Athletes Foundation to provide opportunities and support to people with physical disabilities so they can pursue active lifestyles through physical fitness and competitive athletics. The Challenged Athletes Foundation believes that involvement in sports at any level increases self-esteem, encourages independence and enhances quality of life.
www.chop.edu/consumer/index.jsp
CHOP provides comprehensive inpatient and outpatient care and is one of the leading pediatric hospitals and research facilities in the world.
www.conkerrcancer.org
ConKerr Cancer provides colorful pillowcases to children to help them feel
special while battling life-changing illnesses. With the help of
volunteers, ConKerr Cancer has donated more than 18,000 pillowcases to
children staying at area hospitals, as well as at hospitals all across the
country.
www.childrensmiraclenetwork.org
Children's Miracle Network is the alliance of premier children's hospitals. There is a Children's Miracle Network hospital dedicated to serving children in every community across the United States and Canada.
www.dsusa.org
DS/USA now offers nationwide sports rehabilitation programs to anyone with a permanent disability. Activities include winter skiing, water sports, summer and winter competitions, fitness and special sports events. Participants include those with visual impairments, amputations, spinal cord injury, dwarfism, multiple sclerosis, head injury, cerebral palsy, and other neuromuscular and orthopedic conditions.
www.easterseals.com
Provides information, support, ideas, encouragement & outreach for parents and families of children with disabilities, and the professionals who work with them.
www.eparent.com
Provides information, support, ideas, encouragement & outreach for parents and families of children with disabilities, and the professionals who work with them.
www.fctd.info
The Family Center is a resource designed to support organizations and programs that work with families of children and youth with disabilities. They offer a range of information and services on the subject of assistive technologies.
www.familyvillage.wisc.edu/index.htmlx
Family Village is a global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide services and support.
www.fcsn.org
The Federation is a center for parents and parent organizations to work together on behalf of children with special needs and their families. We can help! Organized in 1975 as a coalition of parent groups representing children with a variety of disabilities, the Federation operates a Parent Center in Massachusetts, which offers a variety of services to parents, parent groups, and others who are concerned with children with special needs.
www.genhopeusa.org
Generation Hope Fund aims to inspire and educate people of all ages to overcome adversity, accept diversity, and live life with “No Excuses…No Limits!”
www.helpinghandsgroup.org
Helping Hands Foundation, Inc. is a not-for-profit support group made up of parents who have children with upper limb differences and who are concerned with the challenges facing the child and the entire family.
http://www.innerwheelusa.com/foundation/
The Inner Wheel U.S.A. Foundation, Inc., provides myoelectric prosthesis to children born without or lost an arm or hand through disease or accident. The clinics work with the children's Myoelectric Limb Project to provide an avenue for children whose insurance or family circumstances do not allow them to benefit from the latest updated technology.
www.insurekidsnow.gov
Insure Kids Now! is a national campaign to link the nation's 10 million uninsured children--from birth to age 18--to free and low-cost health insurance. Many families simply don't know their children are eligible.
www.child-amputee.net
I-CAN is an email support group for adult amputees, parents, and child amputees.
www.kidscamps.com
An online search engine for camp programs.
www.limbdifferences.org
An online resource for families and friends of children with limb differences.
www.littlewonderscenter.com
Offering a wide range of pediatric therapeutic services and group activities ideal for children with Autism, Aspergers, PDD-NOS, Cerebral Palsy, Down Syndrome, Developmental Delays, Mobility-Challenged and Cognitive Impairments, etc.
nadc.ucla.edu
The National Arts and Disability Center promotes the inclusion of audiences and artists with disabilities into the art community.
www.summercamp.org/index.html
The National Camp Association provides an online camp resource that provides referrals to camp programs that will meet the needs of campers.
www.ncpad.com
NCPAD is an information center concerned with physical activity and disability.
www.ncset.org
This organization provides resources and information to help create opportunities for youth with disabilities to achieve successful futures.
www.nichcy.org
Provides information about disabilities, laws regarding special education, and research on effective educational practices.
www.nmaus.org
NMA’s mission is to educate families, medical professionals and others about bacterial meningitis and prevention approaches to the disease.
www.narha.org
NARHA is an organization that promotes equine facilitated therapy and activity programs. Their site also has a search engine to look up therapeutic riding facilities by state, disability, and region.
www.ontheotherhand.org
This site provides information for individuals with hand anomalies.
www.pex.tripod.com
Parents Exchange is an information, referral, and advocacy service for parents and caregivers of children with disabilities and professionals who work with our families. Through support and training, families gain the knowledge, skill, and determination to advocate for their children and make the best choices for their families.
http://www.myoelectric-prosthetic-fitting-and-funding-for-children.com
The purpose of the P.E.P.P. program is to help you find answers to the questions and concerns you may have regarding pediatric upper limb prosthetics and your child's future with a congenital limb deficiency or acquired upper extremity amputation.
www.pffd.org
This site if for parents of children with proximal femoral focal deficiency.
www.snapcc.org
This organization provides resources to parents who have children with disabilities. They help parents become advocates for their children.
www.starbright.org
Starlight Starbright helps seriously ill children and their families cope with their pain, fear and isolation through entertainment, education and family activities.
www.superhands.us
SuperHands provides information and resources for children with upper extremity limb differences.
www.ucpphila.org
UCP aims to positively affect the quality of life for persons with cerebral palsy and other developmental disabilities by providing access to services and programs to help them become independent and productive members of the community.
www.unlimbitedpossibilities.org
This organization assists families with children who have upper limb differences. They are located in the Long Island area of New York.
www.varietyphila.org
Variety’s programs and services are designed to best address disabled children’s physical, social, medical, educational, and recreational needs through activities like year-round camp, field trips, and after-school programming, as well as by providing funding for medical equipment.
www.voicesforamericaschildren.org
The mission of Voices for America's Children is to improve the lives of children in the United States by advocating for effective public policies.
www.forkidcare.com
VPF is a 119-bed pediatric facility that has set new standards for skilled nursing and rehabilitative care by caring for the “whole” child. Services include physical and occupational therapies, environmental assessments, advanced pulmonary care, and a state-of-the-art respiratory care program.
www.vsarts.org
At VSA arts people with disabilities can learn through, participate in and enjoy the arts.
www.wrightslaw.com
This site provides information on special education law and advocacy for children with disabilities.
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